(Of course you have to be willing to eat oats... and I am.)
I've had 2 of the 4 kinds already, and yum, yum, yum. I am happy.
-sigh-
It's so awesome when I get back one of my favorite foods.
A daily blog of all things Mikki. (Which basically means that just about anything could happen.... Predictability's for chumps.)






Here's my strawberry rhubarb pie recipe for you:



"When gluten is carried by the blood to the brain, it causes problems. Dr. Fasano explained that the gluten molecule is similar to endorphins which, along with other things, give us a sense of well-being. The gluten molecules will dock where endorphins are supposed to dock. In effect, the gluten blocks endorphins and the positive feelings they can give us."
Part II -- “You look allergic.”
****************************************************
Thanks for being understanding about my taking a break last week. I hope you’re enjoying my story. This episode picks up where Part III left off: I had just received my diagnosis after a series of Thursday appointments with my doctor. In the face of the unknown, my husband was comforting and encouraging. I was scared.
****************************************************
From fear to uncertainty.
Celiac disease (if you don’t know already) is an autoimmune disorder. People with celiac are gluten intolerant. If we ingest anything made with wheat, rye, barley, or one of its derivatives, our bodies react by attacking the gluten. This attack occurs in the digestive system - the small intestine to be exact. For more info, visit the National Institutes of Health’s Celiac Awareness page.
I had to start my very own awareness campaign, reading web pages, books (thanks to my mom-in-law!), recipes, a listserve, blogs… anything and everything I could get my hands on. I had never heard of Celiac, much less met anyone else with it. I had no one to turn to, no one who had been there. I forged my own way through information towards knowledge.
(Need info? Email me! I’ll send you whatever you need.)
From uncertainty to training
One of the first things I did was purge and sort my pantry. I gave away much of what I could no longer eat. Jim voluntarily gave up much of his gluten-filled foods to help me through the transition. It helped so much to have it almost completely out of the house for a while. For my favorite items, I went to the websites and looked them up. They were sorted into keep and don’t keep piles.
The first time that I went to the grocery store, my shopping time more than doubled: from one hour to about two and a half. I armed myself with lists of acceptable, questionable, and forbidden ingredients and additives. I took my kids with me for moral support. I took my cell phone. I took a cart full of patience.
Produce section: EASY! Woohoo!
Gluten free shelves! Hooray!
Gluten free macandcheese?!? AWESOME! ($4.25 a serving?!? SO WORTH IT.)
Dressings, marinades, and sauces. Oh, crap. From that spot forward, until I got to meats and dairy at the end, I was in super-slow crawl mode.
Many items I could quickly decide yes or no. All of the rest of the items I called the 800 number on the packaging. I asked for verification of gluten or no gluten. The customer service people -- ALL OF THEM -- were super helpful and most of them took my email address and sent full gf product lists to me.
That last paragraph doesn’t really capture the drudgery of this first trip. So many of my absolute favorite items went back on the shelf. So, so many. By the third aisle, I was in tears. Often, this scene was played:
Read, sort, repeat
Read, sort, repeat
Read, sort, repeat
From training to toddling
It wasn’t long - a week, maybe two - before I felt more in control. I started cooking with more confidence, ruined fewer dishes, started finding a little variety in my meals.
It WAS long before I was willing to try any sort of processed food, junk food, multiple-ingredient food, or mixed beverages. I was a purist for a long, long time.
It was hard, but it tasted good.
I felt good.
I looked good.
My skin was good.
My hair was shiny.
The shadows under my eyes faded.
The swelling in my gut disappeared.
I cheated once: when Little Ceasar’s pizza opened nearby. It was NOT worth it. I haven’t cheated since. It doesn’t matter how good something tastes: if it’s going to rip apart your digestive system, it’s NOT worth it.
Once I was comfortable with maintaining my new lifestyle, it was time to change again: from toddling to running. It was time to start experimenting. Oh, yes. Time indeed.
Part II -- “You look allergic.”
****************************************************
Thanks for the comments last week. I'm glad you’re enjoying my story. This week, I don't have the next episode ready: It's been a crazy week. Instead, I'm going to share with you a current snippet of my life with celiac sprue.

Part II -- “You look allergic.”
****************************************************
Thanks for the comments last week. I hope you’re enjoying my story. This episode picks up where Part II left off: Tests and more tests. What was wrong with me, anyway?
****************************************************
How is it possible for life to move too fast and too slow all at the same time? It was about a month from that first Thursday visit when I met Dr. Schultz before I knew for sure what was going on with my body. The time dragged endlessly before me, but now, remembering, I can’t recall having had the time to do a thing. Where did the time go?
I had returned for my follow-up appointment. The tests had come back negative, just like they always had. Dr. Schultz was sure I that I was experiencing problems from something in my diet, and based on our conversations he decided that it was wheat that was bothering me. However, he was not sure that the wheat problem was actually an allergy.
He decided to let me try eating wheat, to judge my reaction to it. It was quite awful - all the ickiness I had been experiencing returned after just a day and a half of eating wheat. So Dr. Schultz tested me for Celiac Disease: a simple blood test would check for the two antibodies produced by those with celiac disease. It would just take a little while to run the tests. I went to the lab. The technician drew more vials of blood. It was a Thursday.
One week later, I was standing near the phone, talking with my husband, debating how long it would be before the test results came back. I had spent the week researching Celiac Disease and its effects, and I was stressed. I didn’t WANT to have an incurable auto-immune disease. (Who does, right?) At the same time, I couldn’t deny that I had many of the symptoms.
I think I was hoping for a simple allergy. We have some weird dietary allergies in my family - what was one more? I could picture us all, sitting around the table, trying to one-up each other’s allergies. Yeah.
The phone rang.
We tensed.
It was the doctor. The tests for both antibodies were positive. VERY positive. I hadn’t eaten wheat for weeks, except for two days when I added it back it to see if it would affect how I felt. Two days, and the results were super high.
I don’t know what I said on the phone. I remember the sunshine in the windows. I remember the look on Jim’s face. I remember hanging up the phone and saying, “Well! … I guess … Aw, crap.” And then I cried. I don’t remember him moving, but suddenly Jim was there and hugging me. It was going to be Ok. It was. We could do it. We could do it together. We could.
There are very few moments that are frozen in my memory. This added one more to my list.
It was Thursday.